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Treated with Humira

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fairysore View Drop Down
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  Quote fairysore Quote  Post ReplyReply Direct Link To This Post Topic: Treated with Humira
    Posted: 24 August 2006 at 9:45am

Hi I am very new to any sort of forum, but have definitely needed one whilst trying to undestand Psoriatic Arthritis.I had many symptoms for years and years but also have severe back problems, and just as my doctor did that my pain was occurring because of that.I am 52, and married with grown up kids 26 and 30.

My problem is that each day my body is different.Early morning, severe feet and ankle  pain and achilles heel tenderness, and more.then it can be both knees with either OA or PA but both knees need a replacement but I am too young.

have meds that are very strong for my back, but the good old Panadein Forte does wonders for bone pain and we have a spa which is so helpful.

My greatest fear is the disabilty bit, where I fear the future as my symptoms have been so bad on  some days, I am very limited to what I can do, and oddly I get a bit better by about 2.30pm and then start to wind down by 5 pm.Not a good way to live but I fear worse is to come. I am on Methotrexate 15mg once a week.and recently tried to come off it and boy did I get a flareup. never doing that again.

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meme View Drop Down
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  Quote meme Quote  Post ReplyReply Direct Link To This Post Posted: 20 August 2006 at 2:57pm
mtx as it is called is a chemotherapy drug, it brings down your immune system and is suppose to help the enbrel, humira, etc to help with our condition, sometimes though the mtx can cause more problems which it did and my case and I was switched to arava with enbrel.  My rd had told me when I was on enbrel you needed another drug like mtx to help it work.   You are required to have monthly bloodwork to make sure there is no liver damage.  meme
I DON'T SUFFER FROM BOUTS OF INSANITY, I ENJOY EVERY MINUTE OF IT!!
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whisper View Drop Down
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  Quote whisper Quote  Post ReplyReply Direct Link To This Post Posted: 19 August 2006 at 8:46pm

hi ive suffered from pa since i was 2 years old . i have tried everything including embrel but have never heard of this methotrexate can u tell me something abou ti please i visit my dr on the 28 th and would like to talk to her about it

 

jen
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  Quote PAForAwhile Quote  Post ReplyReply Direct Link To This Post Posted: 21 July 2006 at 4:52pm

that is great to hear.  I have been on Humira now for awhile and i agree that the 2 week interval is ideal.  However, it seems that a couple of days before My pain begins to creep up on me.  too bad it is not a 2 week and 1 day so you have the day for overlap and less pain :)

Anyway - the only thing that I have noticed is that I am now developing new patches of Psoriasis on my body.  My Thigh, My elbow some near my ear canal.  Some of which are totally new.  So I am now keeping an eye on it to see.

Hope all continues to go well for you

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Lee12345 View Drop Down
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  Quote Lee12345 Quote  Post ReplyReply Direct Link To This Post Posted: 17 December 2005 at 8:04pm

And join us on www.rafriends.com

Many of us have moved over to that board because this board [arthritis insight] has a spammer. Worse, this board has no moderator.

Join us on www.rafriends.com

Lee

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meme View Drop Down
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  Quote meme Quote  Post ReplyReply Direct Link To This Post Posted: 16 December 2005 at 5:48pm
Humira was found to help people like us with pa and psoriasis enbrel is another, enbrel is taken twice a week humira is taken once a week glad things are looking up for you.  Just remember stay away from people who are sick, be careful of cuts, bruises etc. since these drugs bring down your immune system.  Good luck.  meme
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  Quote psorianut Quote  Post ReplyReply Direct Link To This Post Posted: 16 December 2005 at 2:22pm

Hi folks!

This is my first post.

I found your forum, a few weeks ago, while i was looking for info on Humira. I had just been informed, by my doctor, that i now qualified for the drug.

I am covered in psoriasis, and have barely been able to walk, or use my left hand, for several months, due to psoriatic arthritis.

I recieved my first injection, on November 29th. I was shocked, when i got full movement back in my hand, within days, and the pain in my feet eased, within a week.

I am now like a big kid, checking my psoriasis, every time i pass a mirror, as the drug could possibly clear them.

I've had my second dose of Humira, today. It has been 17 days, and the pain started coming back, after about 2 weeks. So the 14 days injection period, seems spot on.

My next dose, is sat in the fridge, and i am starting to look forward to christmas, for the first time.

There are a lot of things we don't yet know about this drug, but with the improvements i have just had, i don't care at this moment in time.

Thanks for reading my post, and merry christmas to you all!!!!!



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meme View Drop Down
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  Quote meme Quote  Post ReplyReply Direct Link To This Post Posted: 27 November 2005 at 9:09am

THAT IS WONDERFUL!!!! i AM GLAD THINGS ARE BETTER KEEP LETTING US KNOW HOW THINGS ARE GOING!!!!!  meme

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  Quote PAForAwhile Quote  Post ReplyReply Direct Link To This Post Posted: 27 November 2005 at 8:25am

I have been on Humira now for 1.5 months.  I asked my doctor how long would it take to see any changes or know if it does not work.  Well after 2 days, it kicked in, I was able to move againg an do the normal day to day activities.

I continue to work and deal with each day as it comes, but Humira has seemed to do wonders.  Am I out of pain, no.  But I am considerably better and am thanksful for that.  I give my shot evey two weeks or twice a month - and I can feel when I need to do it again.  Humira is not a cure, but is helping me.

There has been no real side effects except for the injection day.  After about 4 hours of the injection, I get extremely tired and drained.  But for 1 day of that and 2 weeks of minimal pain, I can deal with it.  Other side effects are occasional headaches (minor though).

Just wanted to stop by to let you all know how the Humira was working for me.

After being on the Enbrel for 7 years, and then getting off of it - I can tell you, life is hell when you are not able to move or do the day to day things.  It is easy to slip into a self pitty state - but forums like these help some.  I can only hope that I can tolerate this drug for sometime as there is not much more at this time.

Thanks for allowing me to communicate with this - I only hope the best for anyone else suffering from the same or other inflictions.

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PSAINTERVIEW View Drop Down
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  Quote PSAINTERVIEW Quote  Post ReplyReply Direct Link To This Post Posted: 24 October 2005 at 5:41pm
 RCG Research is conducting interviews with PSORIATIC ARTHRITIS PATIENTS on Oct 25 & 26th. 
These are  90 minute PHONE interviews
Each  Participant receives $150.00

We are looking to speak with patients who are Currently using Enbrel or Humira to treat their Psoriatic Arthritis condition.
Please call Yale @ 877-433-4093 toll free

Please email Yale @ rollinpics@aol.com
Name
Age
Phone to reach you at:
Current Meds for PSA:
Meds in past:

Thanks so much!
Yale Russcol
Coordinator Psoriatic Arthritis Interviews.
877-433-4093
323-933-9933


Edited by PSAINTERVIEW
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