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Lynn View Drop Down
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  Quote Lynn Quote  Post ReplyReply Direct Link To This Post Topic: New to Enbrel
    Posted: 12 June 2005 at 2:39pm
Hi, I am new to this board. I will be starting Enbrel
Monday and i have been reading everyone's post
and it gives me courage. I was on Arava for 5 years
and got 2 bad liver test back, and i've been on all the
other meds and had a reaction to them so the dr. is
going to start me on Enbrel. I wished they could
have this drug in pill form because i don't like
needles.     
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debv60 View Drop Down
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  Quote debv60 Quote  Post ReplyReply Direct Link To This Post Posted: 13 June 2005 at 6:57am
 hi i start my embrel shots tomorrow tuesday i have tried everything also  allergic to remicade, arava and azulfidine im scared to even try this  by the way i too hate needles well here goes nothing
debbie/ suffering from fibromyalgia, psoratric arthritis
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Lynn View Drop Down
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  Quote Lynn Quote  Post ReplyReply Direct Link To This Post Posted: 13 June 2005 at 11:33am
Hi Debbie, well i thought i would start the Enbrel
today but the dr. hasn't even ordered it yet. i kind of
dread starting the shots but then i don't want the pain
of ra back again. i have been on 5 meds before the
Enbrel and i hope it works. Let me know how it goes
for you.    Lynn
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  Quote debv60 Quote  Post ReplyReply Direct Link To This Post Posted: 14 June 2005 at 3:59pm
hey lynn, its debbie i had my first embrel shot this morning it really wasnt that bad my husband gave it to me in the drs. office.  it did burn but if you go slow it wasnt that bad.  i did have  a bad headache though all day im hoping it was just nerves i am just hoping i dont have a reaction to it like the other drugs, i will keep you posted.   DEBBIE IN PA
debbie/ suffering from fibromyalgia, psoratric arthritis
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Lynn View Drop Down
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  Quote Lynn Quote  Post ReplyReply Direct Link To This Post Posted: 14 June 2005 at 6:05pm
Hi Debbie, well I thought i was going to start the
shot today but i found out that my dr. went on
vacation so i guess she is in no hurry. So i don't
know when i will get to start. My sister takes the
Humira and she said it helped her so much. I am
hoping for the same for us. I had a lot of side effects
with the other meds too. I wished this wasn't a shot
and they had a pill instead, that would be nice. Yes
keep me posted. Lynn in Ky       
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  Quote dyna Quote  Post ReplyReply Direct Link To This Post Posted: 15 June 2005 at 8:08pm

Welcome ladies. I hope you both have good results from Enbrel. It certainly was a godsend for me. It is supposed to give both pain relief and stop disease progression. It has worked well for me since 1998. In the last couple of months it seems to be losing some of its effectiveness for me. I am seeing my Rheu... in 2 weeks and will be discussing my options then. Good luck to you both.

Barb

mountain valley lady
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Lynn View Drop Down
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  Quote Lynn Quote  Post ReplyReply Direct Link To This Post Posted: 16 June 2005 at 7:49pm
Hi Barb, so you have been taking it for quite awhile
now. I am glad it helped you. You said that it was
losing its effectiveness, are you in pain.? I was
taken off the Arava after i used it for 4 and a half
years because i had a bad liver test and the pain is
slowly coming back.   I heard that the Enbrel will
cause side effects such as headaches and sick
stomach. Have you experienced any of these side
effects.?
                                                                                 Lynn
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  Quote Lynn Quote  Post ReplyReply Direct Link To This Post Posted: 16 June 2005 at 7:55pm
   Hi Debbie, how are you feeling.? I was wondering
how you are doing.
                                     Lynn
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  Quote debv60 Quote  Post ReplyReply Direct Link To This Post Posted: 16 June 2005 at 9:01pm
 HEY LYNN, IVE BEEN SOOOOOOOOOOOOOO   ITCHY SINCE YESTERDAY IVE BEEN TAKING BENEDRYL WITH NO RELIEF. IM ITCHY HEAD TO TOE, I PROBABLY WILL CALL THE DR. TOMORROW BEFORE THE WEEKEND I JUST HOPE IM NOT ALLERGIC TO IT , BECAUSE I WAS ALLERGIC TO  THE REMICADE WITH THE RASHES AND ITCHING.   ARAVA CAUSED THE LIVER TO GO WACKY ENDED IN THE HOSPITAL FOR 5 DAYS IN JAN.  AND AZULFIDINE THREW UP DAILY AND LOST A LOT OF HAIR   I HAD TO BUY A WIG ITS FINALLY COMING IN A LITTLE BIT.  IM RUNNING OUT OFOPTIONS. I HOPE IT WORKS FOR YOU  KEEP ME POSTED YOU CAN E MAIL ME AT GEOVTSPL@AOL.COM
debbie/ suffering from fibromyalgia, psoratric arthritis
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  Quote Jealousy Quote  Post ReplyReply Direct Link To This Post Posted: 16 June 2005 at 11:14pm
Originally posted by debv60

hey lynn, its debbie i had my first embrel shot this morning it really wasnt that bad my husband gave it to me in the drs. office.  it did burn but if you go slow it wasnt that bad.  i did have  a bad headache though all day im hoping it was just nerves i am just hoping i dont have a reaction to it like the other drugs, i will keep you posted.   DEBBIE IN PA


I started enbrel about 3 weeks ago and the headache hasnt gone away. I always have a headache the day after all day, and im super tired. So I suggest taking it on a day where the next day you can relax and maybe nap alot hehe. Good luck to you all.
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