Hi. I'm new too, and it's so sad to see there are *plenty* more AS sufferers out there, and many much more severe than mine.
So far, the first rheum I saw preliminarily diagnosed AS and possible fibro. Since then I have started with another rheum, and he is not quite willing to call it AS yet, but he knows it's one of the spondyloarthropathies.
Started with low back and "hip" pain - really the SI joint - that eventually even my chiro couldn't fix. Physical therapy, next to no help. I was to the point where I could barely force my back to something like straight when I got out of bed in the morning.
Voltaren was like magic for about two weeks, then it started to wear off. Now I'm on Indocin, and it's ... well, it's OK. But I was hoping for better. And with less heartburn. But I'm hesitant to try Enbrel or Humira.
I'm frustrated bc x-rays show everything is fine, bloodwork (HLA sed rate, etc.,) ... everything is fine! It makes you think it's all in your head, only you're the only one who knows the pain is for real!
Anyway, that's my story. Maybe some of it is helpful.