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levlarry 
Senior Member
Joined: 06 December 2006
Location: United States
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Posts: 3492
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 Topic: Rituxan Update
Posted: 14 March 2012 at 8:36am |
Well,
I had my three month appointment with the Rheumaltologists. They feel that for now, I have stretched the length of time between infusions far enough. They are concerned that the ra will sneakily come back and do more damage to my joints and they feel that with the damage I already have, it's not a good idea to chance any further damage and so they are going to schedule a new round of infusions. They said to go two more rounds of 9 months and then maybe stretch out the times between infusions to a year. Oh well. I'm not going to try and over-doctor them. I was hoping to just keep on going with out the infusions but, still feel that the Doctors know best.
LEV
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It always feels so good to just feel better.
On that jingle jangle morning I'll come fly with you.
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LinB
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Joined: 18 April 2007
Location: U.S & Mexico
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Posts: 4528
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Posted: 15 March 2012 at 12:44pm |
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I feel the same way Larry and I have a feeling my RD is going to want to give me another round next month....it makes sense. In the last few days I've had some aching in my hand, fingers, knees and feet and I have a feeling I need that 6 month infusion. Like you, I'm hoping that I can go a year after this next round. To be honest with you, I'm thankful and blessed for 6 months of relief and if that's all I get between infusions I'll be happy. So much better than ever before. Lindy
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We are all affecting the world every moment, whether we mean to or not. Our actions and states of mind matter, because we are so deeply interconnected with one another. Ram Dass
RA,Psa,OA
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Marigold
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Joined: 15 March 2006
Location: United States
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Posts: 141
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Posted: 16 March 2012 at 11:19am |
My rheumatologist recommends sticking to the every 6 months schedule for me and it is amazingly effective. For the first time right before this last couple of infusions, I had the beginnings of some aches in my ankles, knees and hips so I suspect the schedule is about right.
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Marigold
Rituxan, Plaquenil, Effexor; Lexapro; Synthroid; Vytorin; Lisinopril; Prilosec; Iron
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babs10
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Location: USA
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Posted: 27 March 2012 at 9:54am |
Larry... how long has it been between infusions? 9 months? more?
I am so glad it's working for all of you..
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Character is so largely affected by association, that we cannot afford to be indifferent as to who or what our friends are
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levlarry
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Joined: 06 December 2006
Location: United States
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Posts: 3492
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Posted: 28 March 2012 at 9:09am |
Hi Babs,
Yep, it's been just over nine months. Monday I had a bone density scan and Tuesday, I had my first of two rituxan infusions. The density scan showed some improvement in parts of my body and showed no change in other parts. I am within the "average" for my age. My left hip being closest to out of range. My rituxan infusion was very uneventful. But I know that my doctors are smarter than me and made a wise decision. I didn't want to admit it but was having more pain and more small flares. So, I will have labs next week and then the following week, if my labs show no problems, I will have my second of two infusions.
LEV
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It always feels so good to just feel better.
On that jingle jangle morning I'll come fly with you.
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