I hope you come over to the other site...I still tend to get a little "lost" over there at times, but it's a fun site. I don't know what happened to this one. I also hope you get your medication straightened out. Who is telling you that 5 mg is what you need? It just may not be enough. I wanted to get off pred so bad, I couldn't admit that 5 mg was not enough, and I tried to reduce further but it's been terrible since then. I think I really set myself back. And I believe that the rheumy didn't recognize a flare, instead she sent me on this wild goose chase with the hydrocortisone (at least that's how I feel about it now).
I am off the hydrocortisone and back on prednisone. My feeling is that they hydro doesn't work as well to control the inflammation. I'm at 6.5 mg pred now. But I think that I needed to be treated as if it were a flare, because I used to be comfortable at 6.5 and now, due to all this tinkering with the dosage, I'm having problems. Or maybe something new is happening?
I have low BP, too. Do you normally have higher BP than 97/67 ? Also, has the doctor checked your hemoglobin and iron? You might be anemic like I am...my primary care doctor sent me to a hematologist and I've been taking large doses of iron for over a month now. I just had some blood tests yesterday and should be finding out soon if the iron is working.
Keep us posted...and try the other site! I shied away from it for a long time, but finally got tired of talking to myself here, basically!