Stuck at 9 mg. and hurting!

Hi, I bought a pair of running shoes -New balance style 730- from Amazon.com which I recieved 3 days ago. What a difference in how I feel! I can walk farther, and the fatigue is noticebly less! The tops and sides are mesh (cool and dry), while the bottoms are very well padded without being mushy, and provide excellant support. My baack and hips are feeling better, not to mention the my feet!    Rich

Hi Jannie,
I know what you mean about seeing your reflection in a store window or whatever, and wondering "is that me?" That was similar to how I got my first real shock...I saw my reflection in the stainless steel wall of an elevator! "Is that what I look like?"

I agree with Nanatjjj; it does sound like you did too much yesterday; for me, sometimes it's hard not to-- if I can muster the energy and ambition to keep going, I'll do more than I probably should. Prednisone doesn't help with fatigue, and in my case, I think the Nexium is also making me tired. Oh well...here's hoping PMR goes away soon.

freesia

Hi Nanatjjj,
Oh, I know what you mean about people keeping those comments to themselves, but I just wanted to say, this friend wasn't being catty or mean--really. Some people, yes, it would come across as being mean-spirited or hurtful. Still--I don't recognize myself most of the time, so it's not fun being reminded how different I look.

The Chipmunk Cheeks Club is definitely not one I want to belong to! LOL...but at least the company is good!

I hate it when the pain makes me feel like I am looking at people "mean" or I'm grouchy, when it's the pain causing it.  I try to explain to people so they won't think I'm staring daggers at them!

freesia


Edited by freesia - 18 June 2011 at 11:12am

Hi all,
Thought I'd jump in here with you. Reading this thread was like reading about what I've been feeling. Mrs. E is so right about taking it slowly with the tapering. I tend to yo yo, but have been trying the slow but sure method. Still at 13 mg. My last day of teaching for the year was Thursday, so I'm now a lady of leisure. I've just begun reducing by 1/2 mg. on alternate days. Even at 1/2 mg., I am hurting more.
The fatigue has been pretty bad lately. With PMR I need so much sleep, at least 9+ hours, but I also wake up a lot in the night. Here in northwest Montana, it's daylight from 5:00 a.m until 10;30 p.m this time of year, which makes it more difficult to sleep.
Today I'm feeling pretty rough. I guess it's not enough sleep and the reduction. It seems crazy that 1/2 mg. could make such a difference!
I also have the hot flashes. They come out of nowhere, so quickly! And the moon face....I was at the pharmacy a couple of days ago and someone I hadn't seen in awhile asked if I'd been to the dentist. I said no, this is a prednisone face. I hate it, and I do notice people looking at me oddly. It's embarrassing.
I understand the concern about antidepressants, but I think it's wise to consider them. I'm taking Celexa. I was soooooo down. This disease is so hard to cope with, that I feel that the antidepressant has eased the emotional burden some. Also, I think they've helped me to continue working. I do only work part time. My rheumy wrote a letter to my school employer and they were wonderful about it. It is true though, we don't look sick, so most people have a hard time understanding what we're going through.
One last thing. I go to a massage therapist once a month. She is very gentle and I feel a lot of relief during and afterwards. Wish I could afford to go more often!
I'm beginning my 3rd year with PMR. Sometimes I feel like it will never go away. I try to look at all the beauty around me, and all that I have to be thankful for...
Sending you all gentle hugs. I don't know what I'd do without this forum.
Jannie

Hi all just reading comments again no real pain in muscles at the moment but limping really bad any ideas feeling not that bad still not got a lot of energy but i know thats be expected but is this something else