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Help!! beware of devious autocrat!

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kokako88 View Drop Down
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  Quote kokako88 Quote  Post ReplyReply Direct Link To This Post Topic: Help!! beware of devious autocrat!
    Posted: 26 March 2006 at 9:02pm

The forum is to promote and sharing experiences, consolations, informations for betterment and finding solutions for arthritis. This is a forum to post awareness, logical statements and contribute views in right prospectives.

There is one devious autocrat also a racist giving names like Troll, Scammer, Sales person whose views do not fit her theory. "The thing he promotes is the book...". "I have had many friends in person and on line to whom English was not their primary language....". It is the nastiness that he (and others like him) tryto convey that come out nonsensical".

This forum as if belongs to her, any other views not fit her theory are deemed quackery, fraud, sales person selling herbal products, books that are written by doctors emphasize on healthy foods without drugs, are also fraud and quackery. This a democratic society, viewers are mature enough to assess logical statements in this forum. Even scientists should have spirit of curiousity. They must say, "Let's try to understand it", and not "It doesn't fit my theory, so it doesn't exist." This the case of Dr. Prusiner, a nobel price winner, who found the mad cow disease. For three decades most scientist have believed that no life can exist or reproduce itself without DNA or RNA, which are the genetic blueprints for life. Dr. Prusiner proved the low disease prions to the contrary.

I hope this forum is not solely controlled by persons who are insensitive, autocratic, unreasonable, making false accusations, and calling others' names. Everyone is entitled to his or her views and expressions!!!! 

Doitright
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arizonara View Drop Down
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  Quote arizonara Quote  Post ReplyReply Direct Link To This Post Posted: 26 March 2006 at 9:55pm
You should take a break from the computer.  It would seem to me that you are taking the internet waaaaaaaaaay too seriously.  
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kokako88 View Drop Down
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  Quote kokako88 Quote  Post ReplyReply Direct Link To This Post Posted: 26 March 2006 at 10:19pm
It is a question of logic, defending integrity and right of views.
Doitright
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seagoat60 View Drop Down
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  Quote seagoat60 Quote  Post ReplyReply Direct Link To This Post Posted: 26 March 2006 at 10:24pm

I agree Az. I myself received a mesage in my email today from a troll, I think?? about it being her duty to alert others to a new drink for Arthritis. Know what I told her?

if I was looking for a product to buy, I was more then capable of finding it myself and did not need a constant reminder of products, there are enough out there as it is.

This forum is not for others to try and push off their views about products and selling them, it is about self help plain and simple.

When all the trolls realize that things will change.

FIBRO/SERONEG RA/IM/EBV/Polyarthralgia
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  Quote pammy416 Quote  Post ReplyReply Direct Link To This Post Posted: 27 March 2006 at 1:29am
Kokako88 do you have RA?  Most of us are dealing with this on a daily basis.  We are all open to each others ideas on how to cope daily with this disease.  No-one here is against any type of therapy that is proven.  We are also (as Seagoat says) internet literate and quite capable of investigating whichever therapy we are interested in and making our own decision as to whether or not we will purchase it.  I don't think any one here is saying you are not entitled to your views but just that they don't necessarily belong in this forum.  You've had your say, now it is time to move on to a different place.  Please don't keep going from thread to thread repeating the same thing as if it is a cure-all for every aspect of this disease.  You have said your piece, any one who is interested can contact you but please stop pushing your stuff at every opportunity.
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  Quote badbones Quote  Post ReplyReply Direct Link To This Post Posted: 27 March 2006 at 4:09am

When I first read this I thought to myself.....does this person have RA, OA, fibro? Does this person understand the difficulty of life and the change that took place? Does this person understand the impact it has had on our relationships, family and friends not to mention our finances? Do they have any idea that in fact as stated before, if we wanted to find a product out of the the realm that our RD's prescribe to us that we would take the time and endurance through all our pain and fatigue and diseased bodies to find it? Does this person actually think we want to learn about a new product or read argumentative statements about something we do not want to read nor are remotely interested in?

So then I thought, what does this person actually have to gain? They have already lost all credibility with the person and or person's he/she is bothering on the website, so why bother to keep posting? A true business person would get the hint, rather, the true and genuine person would have the respect of others on this board who come here for a boost in moral, to forget the pain, to ease the lingering thoughts that our lives will only get worse, maybe better bit by bit but overall if nothing else full of pain each and every waking and sleeping minute of our lives. So why are these people making all these statements that none of us are interested in and just go away as in stop posting?

So I figure these "trolls" or inconsiderate people do not know or realize American culture or English culture for that matter. We have posters from Canada and well as Australia and other places beyond our borders here in the United States; they do not push products, they come here to share a devestating and terminal illness.YEs and I repeat a terminal illness because there is no cure. Everybody knows that if there was a real cure it would be on CNN and all the talk shows.

So I will cut through the Miss Nicey Nicey "Bull". WE are a sickly bunch whether we want to be or not. We get rather cranky because our bodies are falling apart from the inside and quite frankly there are no cures,there are medicines to pause the disease for those individuals who are lucky enough #1 to be able to afford  the medications, and #2 lucky enough that the drugs actually work.

So troll or salesperson that you are, do not waste your time trying to speel products, theories or books with us because we are not interested.Do you know why so many people from here have formed their own message boards?! do you? It is to get away from people who try to sell things to us that we make ever so clear that we do not want. Yep that is right, we do not want your product, or your conversation or your theories on RA because we do not find them worthy or valid of our best interest.

 

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kokako88 View Drop Down
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  Quote kokako88 Quote  Post ReplyReply Direct Link To This Post Posted: 27 March 2006 at 6:04am

This person previously has had chronic gout and RA of neck shoulder's joint and chest. Methotrexate and corticosteriods were drugs used. badbone, "We are a sickly bunch .........." that the way and the fact of your life.

Did I post to sell anything? This is a fact of life, I do not take any drugs for my gout/RA. Whether you like it or not is a fact of my life to share with people who believe in building up healthy body with healthy foods. I am one of the those who loves health foods not drugs.

Sorry to upset. You are not wrong to said there is no cure in medical field with drugs and knifes. As a consultant rheumatologist mentioned in a arthritis congress "Methotrexate is a very potent, immuno-suppressive anti-inflammatory agent that can cause liver or lung disease and that corticosteroids can have side effects of diabetes mellitus and high blood pressure". Thanks god I do not need them anymore. With Vioxx pulled from the market and Celebrex also showing evidence of a link to heart attacks. What are all these life savers!

Not all believe the way you think otherwise there will be healthy foods clinics flourish in America and Europe, and other part of the world. You don't benefit others do.

 

Doitright
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crunchy View Drop Down
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  Quote crunchy Quote  Post ReplyReply Direct Link To This Post Posted: 27 March 2006 at 8:10am

And this is the first post out of 33 in which RA is mentioned. And so the story and the tone change. I give up on this. It is a pointless arguement. I only hope that people who do not agree with 'western medicine' will realize that we all are bright individuals who will seek out holistic care. Meaning we will look for physical therapy and exercise, food and nutrition, herbal and vitamin supplements, and drugs that when used in combination will offer us the best chance of beating this disease and others like it. Maybe some of the self proclaimed 'bringers of light' into our 'darkness' will see that we are well aware of these options and we either choose not to use them, or are already using them in conjunction with other methods.  To Mr Kokako-if you have suffered with Gout and have found that by eating certain foods and takeing of herbs you have been medication free and disease free-then you are fortunate and it is a wonderful thing that you must no longer endure the pain that Gout brings. However, as I initially set out to make clear, many-not all but many sufferers of Gout injest foods that are high in purines which increases uric acid in the body and causes the attack of Gout. This is a simplified explanation, but that is the jist of it. So it would stand to reason (and has been proven) that elimination of the high purine foods will relieve the suffering. RA and OA are not caused by uric acid levels being to high. I am sure that there are some people who have gone into long term remissions from their arthritis simply by following a healty diet and taking herbal supplements. My own mother was dx'd at the age of 9 with JRA and is now 62. She has never taken steroids or DMARDS. Only ASA and eating healthy. She has flare ups and days when she is just really tired. She is starting to show slight changes in the shape of her fingers and she has osteoporosus. But she still works full time, running her own business; she was out in the yard on Saturday helping my Dad trim branches and mowing and pulling weeds. But her sister has RA and has not had luck managing it with OTC meds and diet alone. So you see, even among families, what works for one does not help another. It has already been said and I will say it again: we always welcome new people and new ideas, but not one idea-pushed repeatedly-no matter what the topic. Having our words brought down into a new post and broken down for analysis and criticism. It is rude and suspicious. It reeks of a salespitch--however poor an attempt it may be. And in this case, if a self employed herbalist is not here to push a 'rare' herb or flower, wonderful. But dont make yourself appear as a Troll by continually spouting off about all of us being in the dark. You like your way and we dont tell you after every one of your posts that you really should go get some medicine and see a doctor. Likewise, we demand the same respect. We didnt ask, but if anyone is looking for a dietary and herbal cure for Gout we will send them your way. I dont have Gout, I am not interested in the herbs, foods, or research that you have read about. I personally dont care to hear anything about any of those things. I guess that will be my loss, but I am willing to take that chance. I am telling you this so that you will not be mistaken if you read one of my posts at a later time. This way you will not waste your time responding, because I am not interested.

By the way did you check out my 'word of the day' thread? I thought it was good for a laugh. And yes, I make jokes--It is my sense of humor that keeps me sane. I not only deal with my own illness, but my husband has some health issues as well, my son has asthma and has been severely ill, my 80 yr old grand parents live a block away and I am always helping them, and then I go to work and have to deal with everything from 2week old babies with meningitis to people with gun shot wounds and rape victims, to heart attacks and codes. If I didnt find a way to laugh about the BS that life dishes out I would be in a mental institution. I have been criticised for my joking nature and I just wanted it to be said that most of us here do have a silly side and we enjoy the fun and light heartedness that this type of nonsense brings to our stressful lives.


BTDT-(mtx, plaquenil, enbrel, humira, remicade) now just on Humira and doin pretty good
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pammy416 View Drop Down
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  Quote pammy416 Quote  Post ReplyReply Direct Link To This Post Posted: 27 March 2006 at 8:24am

You go girl!!!

 



Edited by pammy416
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crunchy View Drop Down
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  Quote crunchy Quote  Post ReplyReply Direct Link To This Post Posted: 27 March 2006 at 8:34am

BTDT-(mtx, plaquenil, enbrel, humira, remicade) now just on Humira and doin pretty good
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