Well that is why I ignored it at first. I thought I had seen it discussed but did not remember the cause. But mine plumped back up after fluids. I mean it lasted for several hours. I ran my errands early in the day. It was super hot. I still had pruiny finger tips at night and they had alot of pain and numbness blistered almost as well as pruiny. Drank alot of water and went to sleep I was super tired.
So I guess that might be the difference. If it was just RA I do not think it would have been that easy. I also googled dehydration and then went to the doctor. My potasium is never above borderline low. Usually it below the standard guidlines. Add fluid loss and I am in trouble.
I am more alert. Still I am sleeping more. My guess is that the lack of pain is letting me get some much needed rest. Still I have some pain but the pain medicine is controlling that better now. I had calf cramps and planters cramps. The padding on my feet was swollen and fragile feelling also.
Now there are some other problems. I had low magnesium and I take Mylanta so that makes no scense. I had low urin out put. Normally I am in awe of the fact that with Sjorgrens I feel dehydrated but can still pee alot. I have had low Magnesium before no one even said anything. I just read it on a lab report from the eroom. So maybe more than one thing can cause pruiny finger tips.
So I am getting some gut testing and kidney testing. I got sent to the hospital for an IV of fluids and vitamins and I feel more alert and less tired. Still a little tired but some what functional. I was scary out of it mentally. My sister thought it was the most confused she had ever seen me. Like at the store I had my cart at the counter and a big sign that said use other isle was in my face I just stayed there. She had to coax me to the other isle. I would probably still be there waiting. She said I was bumping in to everything I do not remember I was unaware of that. Not much short term or long term memory going on at all for a few days.
Anyway I did not have loose skin that was wrinkled. It was sort of like bathtub fingers only it was blistered and wrinkled and numb with pins and needles feelling on all of my fingers and my foot pads. I did certainly need to go to the doctor.
Now I am thinking how long has this been going on? Not that I am saying I get dehydrated eveyday. But I know a few times I would pinch the skin on the top of my hands and it just stayed pinched. I remembered it meant something but what? Maybe dehydration I thought it was a sign that my swelling was down and just had loose wrinkled skin. So next time that happens I am going to get some bloodwork done.
Anyway I switched from ice tea to water and did not have pruiny finger tips by the time I went to the doctor. I was still out of it and had low urin out put. I had not been able to get my potasium and magnesium built back up on my own. It is dangerous for us to always think things are AI related. Sometimes I think I know when my potasium is low. I go get my bloodwork done and they grimis and say it is in normal levels but that I am probably flaring because I have an elevated esr. So it is hard for me to tell. So just when I stop being paranoid about it and shrug it off it becomes a problem.
So this is strange or just a fluke. My glands in my face are going down now. I was ignoring things thinking it was Sjorgrens related. Even the first time I went to the doctors they said so. I am sure it was Sjorgrens but my Sjorgrens is happier because of the vitamins and fluids I think or just a fluke? Anyway I feel much better. I look twenty years younger. LOL I was a sight. I am going to take it easy until I get all of my testing done.
I did not start peeing good till yesterday. It seems to be a slow process of getting back to my normal crappy RA feelling. LOL Still have cramps in my calfs and achillies area which is often normal for me. It is difficult to know which doctor to complain to sometimes.
I think bad flares leave us in a fragile state to begin with. I had to get my gallbladder taken out after a flare one time. I almost always think it effects my gut and my kidneys to some extent. Well fifteen years ago I was sent to the kidney specialist. My kidney was swollen and pounding even after I had finished antibiotics for a kidney infection. He yelled at the doctors and told them it was there fault because of the medicine they had given me. Said it scared up my tube and caused inflamation. So I sometimes question that dx.
I know my gut is a source of problems. I have been avoiding that one. Well I think the Remicade will help that also. I do not want surgery until after I give the Remicade a try. That is I have not been putting off emergency surgery. I was told I would need surgery in the future. I have just been avoiding the fact that it is the future. I am a bit past do on my routine scopes and prodding. Well that is a scary thought to me and I am afraid of that. Not a good enough excuse but it is the truth. So now they are making me do the scopes and colon oscopy. I guess but I am still thinking the Remicade will help me with all of my problems.
I live in this body and nothing much that happened this week has not happened before and my magnesium and potasium have straightened out before. I even had the pruiney fingers tips a few years ago once during a bad flare. But I had the low potasium and that is when I saw the note on the bottom of the page the first time low Magnesium and strange but true I had low bloodsugar even. They sent me back to get the test redone and I had popped out of it and was on the mend. So if I have some malabsorption problems they appear to be sparatic and flare related. I do have to admit I thought they should have been a bit more concerned two years ago. I guess I could have a problem that is getting worse. Hopfully not.
Edited by milly - 10 August 2009 at 2:26pm