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BLReady View Drop Down
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  Quote BLReady Quote  Post ReplyReply Direct Link To This Post Posted: 01 February 2006 at 8:18pm

I was recently dxd with Fibro and have thyroid and RA- so I have a ton of fatigue.LOL- I have discovered something fun for me and hubby- I take a nice tub and relax - take a muscle relaxer after the tub and then he will rub softly a nice light warm oil on my sore body...Then if he wants to have sex we do- and it is alot more pleasant than it used to be- I also discovered that with the RA I had moisture problems and there is a great KY jelly that is like a syringe and it lasts for 3 days...so you can be spontaneus...My thing is if I cant sleep might as well get a free back rub-

FYI- do you know that it is a proven medical fact that sex 3-4 times a week helps decrease heart problems???- Just a thought.

Dxd 2/05 RA DxThyroid 11/05 Dx FMS 12/05 Enbrel/Protonox/oxycodone/salmon oil/Vit.D
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maryd View Drop Down
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  Quote maryd Quote  Post ReplyReply Direct Link To This Post Posted: 22 February 2006 at 8:59am
Lol, brenda, nothing to add, but sure glad to see you here
dx ra 6/05, ET, OA - Remacade,
plaquenil,mtx,relafin,ultram, folic acid,flexeril
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  Quote BarJot Quote  Post ReplyReply Direct Link To This Post Posted: 15 March 2006 at 7:05am
Hi Friends,
I was dx 15 yrs. ago with fibro.
I can relate to everything I have read here. When I was first dx, I had not been to a doctor (except my obgyn) when I went into his office, I was sooo full of all kinds of crazy feelings that I started crying and almost couldn't stop! He begin running all kinds of test and after about three weeks of test and three doctors, I was told that I had fibro/cfs. NEVER had I heard of either one! Ooooh the journey, that I was about to encounter ...
Well, all of this was 15 yrs. ago and today, I am still coping and now with aging and more health issues, I can say without a doubt, God is faithful!
I have a wonderful husband that has been so good to me and a family that knows very little. Seems we can never open up like we would like, but no one can fully understand unless they have walked in our shoes, huh!
I guess I just feel there's no use in trying to explain to them, so, I just take a day at a time, same as you all.
I have read all of the post on *sleeping* and I would like to share with you all - the ONLY thing that has helped me to sleep is *Neurontin* It is for seisures but has been proven to help many that suffer with fibro. I have been taking it now for a year and have found that it helps me to sleep better than I have slept in 15 years. It helps some, with the pain but mostly helps me with sleep.
The strongest thing that I have taken for pain is darvocet but seems once the pain sets in, THAT is like taking an asprin.
Sometimes, the *spirit of depression* trys to take control and when we are at our weakest moments(paaaain!) it would be sooo easy to give in and give up!
Having good friends that can relate are sooo helpful in our time of need. I have many friends but only ONE that has the same condition as this.
Staying busy (as possible) has helped me but sometimes I just sat and cry it all out! It is sooo good to have a *friend in Jesus* that understands our pain.
AND,it is sooo good to know that this WILL PASS and we WILL be overcomers one day! Until that day, I believe *encouragement and support* goes a looong way!
Glad to be here today!

to you all!   Barb
No Mountain Too High ...
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Arthy View Drop Down
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  Quote Arthy Quote  Post ReplyReply Direct Link To This Post Posted: 21 March 2006 at 9:40pm
I am new here and just saw the 'no sleep' title - so forgive me if this appears a little out of context.
I had a very short period of 'no sleep' diagnosed with Fibromyalgia [ 10yrs.]
After a week and a half of absolutely no sleep [felt like my eyeballs were nearly on the ground!] I went to the doctor and he gave me 5 Imovane pills. Now, since I was so sensitive to everything I took 1/2 pill every second night. I do not know anything about them except that they are not to be taken continuously as they are 'addictive'
However, I got SLEEP! After those I eased in to just a few hydroxy-triptophan capsules and did well.
About that time I was so angry that there was 'no known cause and no cure' I decided to analyse it at the most basic level of minerals. I thought I was short on Magnesium, chromium, selenium, manganese and boron. I had already started taking Om3 oil, vit E ,Vit C. Of course the pills contained general mixes of other trace elements too. Molasses and lemon drinks as well After 3 months I consider I have a cure. No pain whatsoever and I sleep well. I consider FM to be a trace element deficiency with eventually a virus or bacteria taking advantage of that.
Arthy
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lindaK View Drop Down
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  Quote lindaK Quote  Post ReplyReply Direct Link To This Post Posted: 29 March 2006 at 8:49pm
I'm another fibro sufferer. I also have RA , OA and Sjogren's syndrome. I had fibro years before I was diagnosed with the RA. People don't have the sympathy for fibro that they do with RA, but it's a terrible disease. A hot bath right before bed really helps me. I also have this huge pillow called Comfort U that I lay over the bedding. It makes my muscles less sensitive.  You might try melatonin on nights you can't sleep.  It's over the counter.
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  Quote seagoat60 Quote  Post ReplyReply Direct Link To This Post Posted: 29 March 2006 at 9:31pm

Hi all,

I have been reading the posts and was dx'd with fibro about 7 years ago. My first MD dx'd with several other medical problems as well, GERD, Fatigue, depression, anexity, panic attacks, and the list goes on and on. Currently however, my new doc, and internist is saying RA or possibly Lupus. I think that all of us have some of the possibilities of other disease's that over lap and they may start as one disease and progress to another. They dont know, we must be careful to take heed to our own bodies, tell our doctors what is going on, demand the best care of them, it is our money that they seek !!

As for Fibro and the female side of things, I understand the pain, my husband was so caught up in this that he began to think it was him, and that he was doing something wrong. This lasted for about 4 years, it made living with him unbearable. We tried all sorts of things to ease my pains, nothing helped, sleepless nights, wondering why after going to be I would get up and sometimes be up when he got up the next morning. Stress and pressure are the worst things to add to this disease.

For those lacking sleep try Wellbuterine, it also helps with stress, depression, fatigue.

Good luck and many nights of sleep.

Sharon

FIBRO/SERONEG RA/IM/EBV/Polyarthralgia
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