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QuoteReplyTopic: A regular day. Posted: 14 March 2009 at 2:28am
Well I just thought I would compare a regular day before I was diagnosed and today for interests sake.
Nine years ago - On a Saturday morning I would have been up early getting the eldest child who was 4, breakfast, I was heavily pregnant and was excitedly preparing the baby's room. I was preparing meals to freeze for after the baby was born. I would have stopped for a cup of tea and a slice of cake or something and put a load of washing on. Then I would have probably gone shopping and then a park with Liam for a play with friends while Dad was working. I would have cooked dinner and set the table for dinner when hubby got home, fed Liam and bathed him, put him in his Jammies and pick up Dad from the station. Dinner, bedtime for Liam, a story and then a shower and some TV before bed! All in all a normal busy day.
Now for today, awake at 8.15 am, hubby has got the kids their breakfast and takes it for granted that I will be too sore to do too much, he makes me a coffee and hangs out a load of washing. (I know I am blessed.) I then put some porridge on after taking two tramal, slowly hauling my aching body around the house to loosen up a little, my ribs are raw with pain, my feet so tender, I feel I need my cane, my hips, pelvis and knees, all sore and throbbing, my ankle keeps giving way, hasn't done that before, make a mental note to let GP know on next visit. Hubby sees me and makes me sit down while he fixes up my porridge, a glass of juice and my cocktail of tablets:
After breakfast , I need to sit down and wait for my meds to kick in, so I do that for about 30mins, while talking to the kids or playing something easy, or watching the Simpsons with them,
Then I get up and potter around cleaning up the easy things for me, put another load of washing on, hang it out on the balcony as the washing line, I find it too hard to reach up. I put a jug of coffee on while I pull up the quilts or sheets on the beds, have a quick tidy up of the boys rooms etc, now I am really sore so usually have to retreat to the lounge or if the exhaustion kicks in, then to bed, my eyes are closing on their own and everything is hurting so I sleep. The boys know not to disturb me, hubby takes them out, I awake, have a shower then try again, same thing happens, so today I have mainly slept, and I feel like I have wasted another day and been unable to take the kids to the movies like I wanted to. This evening I am looser now and have managed a game of pool with the boys, we have just had dinner that Daddy cooked and now we are going to watch a movie together, I wanted to go walking but it was raining but I wanted to push myself to do at least 10mins, oh well, lets see what tomorrow brings! janie.
Janie, I feel so bad for you! How strong you are to do the things you do and manage a little one with RA! I am proud of you, Janie, and you are an example to the rest of us for your courage and perseverance!
Gentle wishes for you and Liam (tell him Waddie, waaaayyy far away thinks he must be the bravest boy in the world!) for good health, happy days and peaceful moments.
i truly understand. hang in there. and thank God for our husbands. daily mine takes on more and more responsibility. i just wish my mom would begin to understand and leave me alone about pestering me to be at her house. she has no idea how i feel. many days i do not even get dressed. my hubby is always so proud to see me in something other than a bath robe and this past week has been extremely hard. most days i have gone back to bed and probably should have today as in order not to tell anyone off because of the pain running crazy in my body.
The very words a regular day. It seems to have lost it's meaning from this diesease. Because in all honesty I do not know that I can say a regular day is a good thing for me anymore. When I read your title I thought to myself this can't be good. I pray you have great day in the near future.
To all...I'm so sorry to hear how your days have changed, but still so appreciative for this insight into others who are living like me.
Here's another aspect about changes in a Regular Day.... mental.
It now takes me so long to get brainwork done. I'm able to understand and do it, but it is hard to concentrate for long enough to finish the task. An example is to pay the bills. I used to be able to check the bank statement, pay and mail all the bills as well as clean house, make dinner, take care of my daughters, and have nice evening... all on same day. Now, it takes me 2 days but with nothing else done except my naps and maybe a load of laundry. If I work on papers for disability or for numerous hardship depts of bills owed, basically, any kind of important paperwork or organization of it all, I can never get it done in a day. Frustrating. I used to read 2-3 paperback books; mysteries,suspense,biographies and all the articles in Nat'l Geographic, Newsweek, quiltting mags, nursing journals, and newspapers. Now, it takes me 6+weeks to get through a book, no magazines, no journals, no newspapers. I always took my current book along so I was never bored waiting in lines or at appts. I love reading. This is a big change. It's also one more loss. .... I'm hoping not forever.
CathyMarie..Hurting hands can reach out with caring touch.
gawd, i can soo relate!!! I have right now THE worst provider, can't stand her!!
I don't even want her in my home, my trust has gone out the window.. and sigh, the agency won't do a damn thing... i've put an ad in craigs, no one really wants to do housework.. for 9 bucks an hr... Where are all those people who need a job??? lol and arghh
ohh yeah and i'm supposedly moving.. that will be another post..
I get nothing done.... nothing, sleep, vicodin, pain.. naps, and i'm in soo bad shape.. its hurts to even stretch my hands above my head... pitiful!!
Janie its great you could do some laundry!! ohh reading.. ha, i'm too tired to do it and I'm an avid reader.. now.. its sad and memory?? I do free cell a lot for the brain, lol.
I feel like this old lady, stumbling around my house, shuffling.. more like it...
I know you have to move to make energy,, HA!.. i took some cans out to the trash, landlord was getting upset about them so i have to throw $$ away..and just that small task.. OW..
Its ridiculous!! I'm not on Mtx right now or anything major.. to stop the progression..
(and too tired ,to figure out how to work the control panel)..
Vicodin works w/ the pain, but kinda knocks me out, so i'm woozy, but rather have confused then ow..
Follow your bliss~owner of ra,oa,fibro, etc.ON Prozac~(bipolar), embrel, folic acid,,Mobic,valium, darovcet, vicodin, vitimins and atarax
and depokate. Now can i read a nice story? :)
Thanks Mel, Waddie, Milly and whispered, you all make me feel that I am not so abnormal now! Hugs Janie. My brain doesn't work in gear, same thing with books, takes me forever now, and I can't remember the strot half the time and have to go back a bit and remind myself. It is all I can do to keep up with my sons stories in his yr 4 readers! Now that is bad!!!!
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