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Judi25 View Drop Down
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Joined: 29 October 2006
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Posts: 88 		  Quote Judi25 Quote  Post ReplyReply Direct Link To This Post Topic: Hello Everyone
    Posted: 01 September 2007 at 3:35pm

I've been away for a while as life had got so hectic. We have moved 200 miles from Worcestershire to Kent and had all that it entailed with getting three girls into school and moving work as well. House is nearly straight and this coming week the girls start their new school and Robert and I go back to work (we are in the same department). Needless to say my body does not like all this upheaval.

Latest on the dx - most probably lupus as the bloodwork is getting more positive.  I am waiting for a referral to a new rheumy at the new hospital. As I am now down to 3.5mg my walking is getting worse. It hasn't helped falling over in the garden and landing on my knee (ow!).

Hope you are all as well as can be. I hope to catch up with you soon.

Love Judi xx
RA dx 2003; PMR dx Oct 2006; MS (????), Lupus (????) un-dxd but "something autoimmune and neurological is going on"

I have PMR - PMR doesn't have ME!!!!!
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mrsoldduck View Drop Down
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Joined: 16 August 2007
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Posts: 92 		  Quote mrsoldduck Quote  Post ReplyReply Direct Link To This Post Posted: 01 September 2007 at 6:36pm

Hi Judi,

Welcome back!  Sounds like you've been very busy. 

I'm sorry to hear you are having more un dxd issues.  It's bad enough to have two diseases attacking you, much less three!   I'm not too familiar with Lupus, I've done some reading about it, but it sounds like you are a very strong person and will fight whatever life throws at you. 

Please let us know how things progress.  I think it's important we keep track of each other.  I'll definitely say a little prayer for you tonite. 

You take care!

Kathy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"After a certain age, if you don't wake up aching somewhere,
you are probably dead." -- Maxine
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chico View Drop Down
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Posts: 253 		  Quote chico Quote  Post ReplyReply Direct Link To This Post Posted: 02 September 2007 at 2:20am
Hi Judi, moving is exciting, but really tiring as well. From what I know, Kent is beautiful and must be warmer for you too, which I am sure you will welcome.

Keep visiting us here with updates. Hope you are feeling OK.
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Judi25 View Drop Down
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Posts: 88 		  Quote Judi25 Quote  Post ReplyReply Direct Link To This Post Posted: 08 September 2007 at 2:29pm

Hi Cathy and Chico

Thanks for your messages. We are getting "back to normal" (whatever that is  ). Now have carpets laid and most of the furniture is in the right place. We've ordered a new bed and can't wait...my joints are in need of a treat after all the upheaval.

I have noticed that it is warmer down here, although the last couple of days the autumn morning mists have started but the sun shines through after a while and we got to about 21 deg C this afternoon. My husband can't wait until it gets cooler as we have a log burning stove in our new lounge (not had one before) and he has spent most of the last four weeks tearing/cutting/sawing paper/cardboard/kindling ready for the season. The fire is all set ready but it was too warm tonight (patio doors open!).

Soon to bed. We have the "Last Night of the Proms" on TV: a great British tradition and a good singalong, too.

Hope you are having a great weekend.

Love Judi xx
RA dx 2003; PMR dx Oct 2006; MS (????), Lupus (????) un-dxd but "something autoimmune and neurological is going on"

I have PMR - PMR doesn't have ME!!!!!
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margaret/uk View Drop Down
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Posts: 106 		  Quote margaret/uk Quote  Post ReplyReply Direct Link To This Post Posted: 08 September 2007 at 2:35pm
hi Judi

good to have you back. I've just spent a week in Norfolk with lovely warm
temps in the low 20's. I'm back in Lancaster tonight, and it got colder and
colder as I came north. Last Night of the Proms has just reached the Auld
Lang Syne stage - all over for another year - it always feels like the end of
summer.

Margaret
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mrsoldduck View Drop Down
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Posts: 92 		  Quote mrsoldduck Quote  Post ReplyReply Direct Link To This Post Posted: 08 September 2007 at 7:21pm

Good to hear from you Judi!

I'm glad the worst of the move is over and you have some wonderful comforts to look forward to.  We have a wood burning fireplace in the livingroom and I love a fire in the fall and winter.  The weather here in the Northwest US is similar to the UK according to friends I've known who lived there at one time.

Hope your walking is a little better now.  Please keep us up to date with how you are doing.

Take care, Kathy

 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"After a certain age, if you don't wake up aching somewhere,
you are probably dead." -- Maxine
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pgr555 View Drop Down
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Posts: 348 		  Quote pgr555 Quote  Post ReplyReply Direct Link To This Post Posted: 09 September 2007 at 7:10pm
Since we always share our frustration/depression and are so supportive of
one another, I just wanted to say today has been GOOD!!!

I spent yesterday doing what could be called spring cleaning because we
are having 45 people here Thursday and my house hasn't been really
cleaned since PMR came to stay a year ago. (I know you can all relate).

Then I drove an hour to see Patty Larkin and have dinner with my cousin.
Got home at 12:30 this morning. Oh did I metion I left Mr. Pred home and
since I usually take 5 mg w/ dinner, that put me 5 hours behind... I WAS
SCARED!!!

I had to be up to finish the cleaning by 8 so we could pick up my son who
pgr
was coming home from 3 months over seas at 10:30 am.

Spent the rest of the day hanging with him and relaxing except cooked a
big dinner.

Anyway, it is 10 pm and I am tired but NOT hurting!!! The pred miss was
ok! Which makes me feel like I can finally safely start the tapering! YIPPEE!

So that was mor info than any of you needed, but I wanted to say things
were seeming better/brighter today. Guess I just said ti the long way
pgr555
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mrsoldduck View Drop Down
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Posts: 92 		  Quote mrsoldduck Quote  Post ReplyReply Direct Link To This Post Posted: 10 September 2007 at 10:07am

Hi All,

PGR, that is great news.  My goodness you had an exciting day.  Hope you got a good nite sleep, how are you feeling today? 

Kathy

 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"After a certain age, if you don't wake up aching somewhere,
you are probably dead." -- Maxine
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pgr555 View Drop Down
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Posts: 348 		  Quote pgr555 Quote  Post ReplyReply Direct Link To This Post Posted: 10 September 2007 at 4:36pm
Slept a solid 8 hours, had a busy day today and am feeling ok at the
moment. Plan to sleep long tonight! Fingers crossed!
pgr555
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